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The Women Who Launched Long-Term Care Advocacy in Kansas
Libby Hastings • March 1, 2024
Spearheaded by the activism of Anna "Petey" Cerf, a "band of six" women from the Lawrence and Topeka communities came together with a shared vision: to improve the quality of long-term care for older adults and adults with disabilities in Kansas nursing homes. They were appalled by the poor conditions and mistreatment that they witnessed in many of these facilities and knew that something had to be done.
These women, Jessie Branson, Anna "Petey" Cerf, Lesley (Lee) Ketzel, Harriet Nehring, Katie Pyle, and Bryona Wiley, were not content to simply accept the status quo. They refused to turn a blind eye to the suffering of those who were most vulnerable and were determined to make a change.
Together, they founded Kansans for Improvement of Nursing Homes in 1975 and launched a reform movement through political advocacy, lobbying for changes to the laws and regulations that governed nursing homes.
Their efforts were not always easy. They faced opposition and hostility from those who were resistant to change and had to fight tirelessly to make their voices heard. But they persevered, driven by a deep sense of compassion and a commitment to making a difference.
The organization has evolved over the years (even changing their name to Kansas Advocates for Better Care), but the significant impact on the lives of countless individuals in Kansas remains. KABC continues to advocate for policies and regulations that improve the quality of care in all long-term care settings and provide support and resources to individuals and families who are navigating the complex world of long-term care.
The legacy of these six women is a testament to the power of advocacy and the impact that dedicated individuals can have on their communities. They refused to accept things as they were and fought for change, making a profound difference in the lives of so many while emphasizing the fundamental right to be treated with dignity and respect.
As we celebrate Women's History Month this March, let us remember the courage and determination of these trailblazing women, and let us recommit ourselves to the fight for better care for all. Their legacy continues to inspire us today.
The Kansas legislative session is in full swing, making it the perfect time to engage with your lawmakers and advocate for policies that improve long-term care in our state. Whether you're a seasoned advocate or just getting started, knowing how to effectively communicate with legislators is key to making a difference. We believe that every voice matters, and lawmakers want to hear from the people they represent. To find your legislator, visit the Kansas legislative website. When you visit www.kslegislature.org , there is an option on the left side of the website to “Find Your Legislator”. You may search by name, chamber, party, or select “Seach by Your Address”. This will lead you to Plural , a platform to find bill information and your local legislators by typing in your home address. Tips for Effective Advocacy Be Friendly – Legislators are people too! Approach them with sincerity and honesty. While time may be limited, be sure to focus on the issue you're there to champion. Be Prepared – This is your chance to educate. Start with a clear, concise explanation of the issue, and provide only factual information. Be Respectful – Not everyone will agree with your position. Some lawmakers may have concerns about costs, feasibility, or other factors. Treat them with respect, as they may be allies on future issues. Be Direct – Answer questions openly and honestly. Share the full picture, including both the challenges and the solutions. Ask for a Specific Action – Make it clear what you want your legislator to do. Common advocacy actions include: Sponsoring a bill Urging committee leadership to take action on a bill Speaking for or against a bill during debate Holding a public event to raise awareness Writing a letter to state agencies about oversight and implementation of a law Establish a Relationship – Don't just reach out when you need something. Contact your legislators regularly, thank them when they support your issues, and stay engaged. Building a relationship increases the likelihood they will listen when you advocate for change. Say Thanks – Gratitude goes a long way! Always follow up with a thank-you note or email after a meeting, even if the legislator disagrees with your position. Advocacy is about persistence, education, and relationship-building. By using these strategies, you can help ensure that long-term care remains a priority for Kansas lawmakers. Want to learn more? Check out KABC’s full Advocacy 101 guide here .
On Thursday, January 30th, Dan Goodman, Executive Director, presented testimony before the House Social Services Budget Committee. His remarks focused on essential recommendations for the Kansas Department of Aging & Disability Services (KDADS) budget, underscoring the urgent need for a Statewide Resource Guide for Older Kansans. Dan’s testimony emphasized Kansas’s rapidly aging population, with projections showing that more than 20% of Kansans will be 65 or older by 2030. With state resources already stretched thin, KABC urged the committee to prioritize investments in solutions that diversify and enhance access to long-term care services across Kansas. Highlighting the Statewide Resource Guide KABC’s flagship recommendation was a comprehensive Statewide Resource Guide for Older Kansans, modeled after the highly successful Douglas County Senior Resource Directory. The proposal seeks $190,000 to develop and distribute a directory that would serve as an essential tool for older Kansans and their families. The funding would cover: Initial Setup & Information Coordination: $85,000 One-Time Master Printing for Statewide Distribution (35,000 copies): $105,000 The guide would provide accurate, accessible, and up-to-date information on long-term care services and resources, with an online version that could be printed on demand. This initiative aligns with the Senior Care Legislative Task Force’s final recommendations and would empower Kansans to make informed decisions about care options. Dan emphasized the proven success of the Douglas County Senior Resource Directory, which KABC developed with grant funding through the Douglas County Community Foundation. Since its launch, the directory has been accessed online by over 700 individuals and distributed to hundreds of older adults, caregivers, and local businesses. Expanding this model statewide would ensure that every Kansan—regardless of where they live—has access to vital information when they need it most. Other Budget Priorities KABC Supports KABC also backed several of KDADS Governor’s budget recommendations, including funding increases for: HCBS Frail Elderly Waiver Growth HCBS Brain Injury Waiver Growth Nutrition Services Incentive Program Stay tuned for updates as we continue to advocate for these critical investments during the legislative session!