A man and a woman are holding hands at a table.

Enacting Change

Breathtaking colors of our planet
Button
An elderly man with a beard is sitting on the stairs using a cell phone.

Informing, Guiding, and Protecting

Portraits of people from around the globe
Button
A man is sitting in a lotus position on the beach.

Helping You Make an Educated Choice

Stark beauty of desolate dunes
Button
An elderly woman and a young girl are sitting on a bench holding hands.

Get Involved

Visual odyssey across continents
Button

Advocacy in Action (April 2024): The Abuse of Antipsychotic Medication

Libby Hastings • April 8, 2024

The latest data from the Long-Term Care Community Coalition paints a troubling picture of the prevalence of antipsychotic drug use among nursing home residents nationwide. Shockingly, over 250,000 residents are being administered these dangerous drugs, often without clinical justification. Antipsychotic drugs are too frequently used as chemical restraints, particularly among individuals with dementia or dementia-related diagnoses. Instead of receiving the services they are entitled to under federal law to live comfortably, residents are being sedated, robbing them of their autonomy and quality of life. 


Antipsychotics are drugs that are used to treat symptoms of psychosissuch as delusions (for example, hearing voices), hallucinations, paranoia, or confused thoughts. They are used in the treatment of schizophrenia, severe depression and severe anxiety. 


In Kansas, the situation is no less alarming. Approximately 117 nursing facilities out of 300 in our state have 20% or more of their residents on antipsychotic medication. CMS Region 7 (serves Iowa, Nebraska, Missouri, and Kansas) had the highest regional rate (24.7%). This misuse of medication not only violates the rights of residents but also puts their health and well-being at risk with potentially severe consequences.


Antipsychotic drugs are associated with a host of adverse outcomes in older adults, including heart attacks, strokes, Parkinsonism, falls, and even death. It is clear that the overuse of these drugs constitutes a serious threat to the safety and dignity of nursing home residents.


Furthermore, the data from the Long-Term Care Community Coalition underscores the need for increased oversight and accountability within the long-term care industry. The fact that non-risk-adjusted data show such a high prevalence of antipsychotic drug use, coupled with a significant increase in potentially fraudulent schizophrenia diagnoses (194% increase between 2015 and 2019), is deeply concerning. 


In the "Final Report of the Kansas Senior Care Task Force to the 2023 Kansas Legislature", the Kansas Senior Care Task Force, consisting of legislative and non-legislative members, recommended leveraging technology to connect highly specialized geriatric psychiatric prescribers across the state for consultation. The task force also recommended improving upon existing standard training and education by providing targeted education for surveyors, direct care workers, providers, prescribers, long-term care providers and caregivers on the use of prescribed psychotropic medication for older adults with dementia or geriatric behavior health conditions. 


We encourage all individuals to utilize the data provided by the Long-Term Care Community Coalition. In the data spreadsheet, you can filter by state and county. 


Thank you for your ongoing support in our mission to advocate for the rights and well-being of those in long-term care.


Alarming Rate of Antipsychotic Drugging in US Nursing Homes

Advocacy with KABC 101: Your Guide to Making an Impact

By Libby Hastings • February 10, 2025
The Kansas legislative session is in full swing, making it the perfect time to engage with your lawmakers and advocate for policies that improve long-term care in our state. Whether you're a seasoned advocate or just getting started, knowing how to effectively communicate with legislators is key to making a difference. We believe that every voice matters, and lawmakers want to hear from the people they represent. To find your legislator, visit the Kansas legislative website. When you visit www.kslegislature.org , there is an option on the left side of the website to “Find Your Legislator”. You may search by name, chamber, party, or select “Seach by Your Address”. This will lead you to Plural , a platform to find bill information and your local legislators by typing in your home address. Tips for Effective Advocacy Be Friendly – Legislators are people too! Approach them with sincerity and honesty. While time may be limited, be sure to focus on the issue you're there to champion. Be Prepared – This is your chance to educate. Start with a clear, concise explanation of the issue, and provide only factual information. Be Respectful – Not everyone will agree with your position. Some lawmakers may have concerns about costs, feasibility, or other factors. Treat them with respect, as they may be allies on future issues. Be Direct – Answer questions openly and honestly. Share the full picture, including both the challenges and the solutions. Ask for a Specific Action – Make it clear what you want your legislator to do. Common advocacy actions include: Sponsoring a bill Urging committee leadership to take action on a bill Speaking for or against a bill during debate Holding a public event to raise awareness Writing a letter to state agencies about oversight and implementation of a law Establish a Relationship – Don't just reach out when you need something. Contact your legislators regularly, thank them when they support your issues, and stay engaged. Building a relationship increases the likelihood they will listen when you advocate for change. Say Thanks – Gratitude goes a long way! Always follow up with a thank-you note or email after a meeting, even if the legislator disagrees with your position. Advocacy is about persistence, education, and relationship-building. By using these strategies, you can help ensure that long-term care remains a priority for Kansas lawmakers. Want to learn more? Check out KABC’s full Advocacy 101 guide here .

Advocacy in Action (February 2025): KABC Testifies Before House Social Services Budget Committee

By Libby Hastings • January 29, 2025
On Thursday, January 30th, Dan Goodman, Executive Director, presented testimony before the House Social Services Budget Committee. His remarks focused on essential recommendations for the Kansas Department of Aging & Disability Services (KDADS) budget, underscoring the urgent need for a Statewide Resource Guide for Older Kansans. Dan’s testimony emphasized Kansas’s rapidly aging population, with projections showing that more than 20% of Kansans will be 65 or older by 2030. With state resources already stretched thin, KABC urged the committee to prioritize investments in solutions that diversify and enhance access to long-term care services across Kansas. Highlighting the Statewide Resource Guide KABC’s flagship recommendation was a comprehensive Statewide Resource Guide for Older Kansans, modeled after the highly successful Douglas County Senior Resource Directory. The proposal seeks $190,000 to develop and distribute a directory that would serve as an essential tool for older Kansans and their families. The funding would cover: Initial Setup & Information Coordination: $85,000 One-Time Master Printing for Statewide Distribution (35,000 copies): $105,000 The guide would provide accurate, accessible, and up-to-date information on long-term care services and resources, with an online version that could be printed on demand. This initiative aligns with the Senior Care Legislative Task Force’s final recommendations and would empower Kansans to make informed decisions about care options. Dan emphasized the proven success of the Douglas County Senior Resource Directory, which KABC developed with grant funding through the Douglas County Community Foundation. Since its launch, the directory has been accessed online by over 700 individuals and distributed to hundreds of older adults, caregivers, and local businesses. Expanding this model statewide would ensure that every Kansan—regardless of where they live—has access to vital information when they need it most. Other Budget Priorities KABC Supports KABC also backed several of KDADS Governor’s budget recommendations, including funding increases for: HCBS Frail Elderly Waiver Growth HCBS Brain Injury Waiver Growth Nutrition Services Incentive Program Stay tuned for updates as we continue to advocate for these critical investments during the legislative session!
Share by: