Get in touch
The Women Who Launched Long-Term Care Advocacy in Kansas
Libby Hastings • Mar 01, 2024
Spearheaded by the activism of Anna "Petey" Cerf, a "band of six" women from the Lawrence and Topeka communities came together with a shared vision: to improve the quality of long-term care for older adults and adults with disabilities in Kansas nursing homes. They were appalled by the poor conditions and mistreatment that they witnessed in many of these facilities and knew that something had to be done.
These women, Jessie Branson, Anna "Petey" Cerf, Lesley (Lee) Ketzel, Harriet Nehring, Katie Pyle, and Bryona Wiley, were not content to simply accept the status quo. They refused to turn a blind eye to the suffering of those who were most vulnerable and were determined to make a change.
Together, they founded Kansans for Improvement of Nursing Homes in 1975 and launched a reform movement through political advocacy, lobbying for changes to the laws and regulations that governed nursing homes.
Their efforts were not always easy. They faced opposition and hostility from those who were resistant to change and had to fight tirelessly to make their voices heard. But they persevered, driven by a deep sense of compassion and a commitment to making a difference.
The organization has evolved over the years (even changing their name to Kansas Advocates for Better Care), but the significant impact on the lives of countless individuals in Kansas remains. KABC continues to advocate for policies and regulations that improve the quality of care in all long-term care settings and provide support and resources to individuals and families who are navigating the complex world of long-term care.
The legacy of these six women is a testament to the power of advocacy and the impact that dedicated individuals can have on their communities. They refused to accept things as they were and fought for change, making a profound difference in the lives of so many while emphasizing the fundamental right to be treated with dignity and respect.
As we celebrate Women's History Month this March, let us remember the courage and determination of these trailblazing women, and let us recommit ourselves to the fight for better care for all. Their legacy continues to inspire us today.
In a recent podcast episode and article with the Kansas Reflector, Dan Goodman, Executive Director, and Libby Hastings, Communication and Public Relations Coordinator, shed light on the critical issues facing nursing facilities in Kansas. Interviewed by Tim Carpenter, they discussed the alarming findings from the Long Term Care Community Coalition's latest data regarding "problem facilities" and the federal staffing mandate from U.S. Centers for Medicare & Medicaid Services. This conversation was based on the insights shared in our July e-newsletter Advocacy in Action article and has garnered significant attention. Media outlets and local newspapers in Hays, Dodge City, Ottawa, and Wichita have picked up the Kansas Reflector story, amplifying the urgent need for reform in long-term care. At KABC, we remain steadfast in our mission to ensure quality long-term care for all Kansas residents. We invite you to read our article with Tim Carpenter and listen to the podcast episode. Your support and engagement are crucial as we continue to fight for improved care standards. We extend our heartfelt thanks to our supporters and the media for helping us share the harsh realities of nursing homes. Together, we can drive the change needed to ensure safe, dignified, and quality care for all residents in Kansas.
The Long-Term Care Community Coalition (LTCCC) recently released alarming data on the state of nursing facilities across the United States, revealing that nearly one in four nursing homes (24.6%) qualify as "problem facilities." This term encompasses nursing homes that have received a one-star rating on the federal Five-Star Quality Rating System , are part of the Special Focus Facility (SFF) Program or are SFF candidates. These facilities are notable for their substandard care and persistent compliance issues. National and Kansas-Specific Findings The data paints a concerning picture of nursing facility care quality nationwide, and Kansas is notably worse than the national average. According to LTCCC's data, out of the 306 nursing facilities in Kansas, 25.2% are classified as "problem facilities", 59.8% of nursing facilities in Kansas are for-profit, and 75% of "problem facilities" in Kansas are for-profit. The Five-Star Quality Rating System The Centers for Medicare & Medicaid Services (CMS) utilizes the Five-Star Quality Rating System to aid consumers in comparing nursing homes. This system rates facilities on a scale from one to five stars, with five-star ratings indicating superior care and one-star ratings flagging the poorest quality. The effectiveness and accuracy of the CMS Five-Star Quality Rating System has been debated among long-term care advocates, residents, and their families. A star rating is composed of three parts: outcomes from the state inspection report, staffing, and quality measures. For-Profit Facilities and Quality Concerns The LTCCC report highlights a troubling correlation between for-profit status and lower-quality care. A federal government study , released in November 2023, concluded that for-profit nursing facilities tend to have lower quality ratings, fewer registered nurses, and more safety violations, prompting one to wonder if for-profit facilities prioritize financial returns over patient care. A February 2021 study from the National Bureau of Economic Research found that going to a facility owned by a private equity firm increased the chance that a resident would die by 10%, compared with living in another type of facility. The Special Focus Facility Program The SFF Program targets nursing facilities with a history of serious quality issues. Facilities are identified based on their performance over the last three standard health survey cycles and three years of complaint surveys. Points are assigned for deficiencies cited during inspections, with higher points given for more severe violations. Those facilities with the highest points become SFF candidates, marking them as requiring significant improvement. The methodology behind the SFF Program is the same as that used for health inspections within the Five-Star Quality Rating System. This rigorous approach ensures that only those facilities with the most concerning track records are selected for intensified oversight. Implications for Consumers The LTCCC's findings and data serve as a crucial reminder for consumers to be vigilant when selecting nursing facilities. The prevalence of "problem facilities", especially among for-profit institutions, underscores the importance of thorough research and consideration of a facility's rating and compliance history. As always, if you would like Consumer Information Reports about any licensed long-term care facility in Kansas, feel free to call or email . There is never a charge for any of our materials. At KABC, we will continue to advocate for increased staffing, quality care, and financial transparency within for-profit nursing facilities.