Advocacy in Action (September 2024): KABC Testifies at the Bob Bethell KanCare Oversight Committee

Libby Hastings • October 1, 2024

On Monday, August 26th, Libby Hastings, Communication and Public Relations Coordinator, had the honor of presenting testimony on behalf of KABC to the Robert G. Bethell Joint Committee on Home & Community Based Services & KanCare Oversight Committee. Our goal was clear: to advocate for the reinstatement of the "Explore Your Options" (EYO) resource guide, a vital tool for older Kansans and their caregivers.

In recent months, our work with the Douglas County Senior Resource Directory has underscored the critical need for a comprehensive resource guide. Since launching the directory, we've seen firsthand how essential it is for older adults to have access to reliable, up-to-date information about the services and resources available to them. The response to our directory has been overwhelmingly positive, with individuals and families expressing their appreciation for a resource that helps them navigate the complexities of long-term care. 


The importance of the EYO guide was highlighted in the Final Report of the Kansas Senior Care Task Force to the 2023 Kansas Legislature. A key recommendation from the Task Force was for the Kansas Department for Aging and Disability Services (KDADS) to reinstitute the EYO guide, which would provide a centralized, accessible source of information for older adults across the state. The guide would be published online and in print, ensuring that those without internet access can still benefit from this essential resource.


The need for such a guide is urgent. As one of the working groups from the Kansas Senior Care Task Force noted, it is critical for older adults and caregivers to know where to access service information and resources when the need for long-term supports and services arises. The lack of access to reliable, accurate information can lead to frustration, confusion, and potentially harmful outcomes for seniors and their families. 


While some areas of the state, like Johnson County and Central Plains, have found ways to create their own versions of the EYO guide, most counties do not have the resources or capacity to do so without state assistance. That’s why we’re asking this committee to encourage and support KDADS in bringing back the EYO guide. By doing so, we can ensure that all older Kansans, regardless of where they live, have the information they need to make informed decisions about their care. 


A hand places a red pill into a weekly medication box, surrounded by pill bottles.
By Libby Hastings March 25, 2026
On March 19, 2026, a Washington Post article highlighted a recent Office of Inspector General for the Department of Health and Human Services investigation that brought renewed national attention to a troubling reality inside America’s nursing homes: powerful antipsychotic drugs are being used not as treatment, but as control. The report found that some facilities are misdiagnosing residents with schizophrenia to justify prescribing antipsychotic medications. These drugs are often not approved for people with dementia and carry serious risks, including falls, strokes, and even death. In many cases, these medications are used to manage behaviors that are not dangerous, such as calling out, resisting care, or expressing distress. The result is what advocates have long warned about: the use of chemical restraints to sedate residents for staff convenience. A National Problem Decades in the Making The misuse of antipsychotic drugs in long-term care has been documented for years. In April 2024, KABC highlighted this issue in our advocacy work, noting that hundreds of thousands of nursing home residents nationwide are given antipsychotic medications, often without appropriate clinical justification. These drugs carry an FDA “black box” warning for use in older adults with dementia due to an increased risk of death. Federal efforts over the past decade have aimed to reduce unnecessary use, yet as of early 2026, approximately 17% of long-stay nursing home residents in the United States are still receiving antipsychotic medications. At the same time, recent federal policy discussions in March 2026 have raised concerns among advocates that loosening reporting requirements could reverse progress made in reducing inappropriate use. Kansas Is Not Immune This issue hits close to home. In 2022, the Kansas Legislature’s Senior Care Task Force released a report to the 2023 Legislature identifying the administration of antipsychotic medications and protections against abuse and neglect as critical areas for reform. The Task Force emphasized that these medications could have serious and even fatal consequences for older adults, particularly when used inappropriately. Advocates in Kansas have reported that up to 26% of nursing home residents, and nearly 40% of those with dementia, have been prescribed antipsychotic medications in recent years, despite well-documented risks. While some facilities have made progress, reductions in use have stalled in recent years, raising concerns that systemic issues remain unresolved. Why It Happens At its core, the misuse of antipsychotic drugs is often a symptom of deeper systemic problems, many of which have been exacerbated since the COVID-19 pandemic. Experts and investigators point to: Chronic understaffing, intensified since 2020 Lack of training in dementia care Pressure to manage behaviors quickly Lack of person-centered practices in care Gaps in oversight and accountability Non-drug approaches, like personalized care, meaningful activities, and addressing unmet needs, are widely recognized as best practice. But they require time, staffing, and resources that many facilities continue to lack in 2026. When those supports are missing, medication restraint becomes the default. What Proper Care Should Look Like Clinical guidance has long been clear, and yet remains unchanged in 2026. Antipsychotic medications should be a last resort, used only when: Non-drug interventions have failed The resident poses a risk to themselves or others The benefits outweigh the serious risks Even then, they should be used cautiously, closely monitored, and regularly reevaluated. The Path Forward for Kansas Kansas has an opportunity, and an obligation, to act. Building on the 2022 Senior Care Task Force recommendations, advocates continue in 2025–2026 to call for: Expanded access to geriatric mental health specialists Stronger oversight and enforcement Improved training in dementia and person-centered care Greater transparency for residents and families Meaningful solutions to the ongoing staffing crisis At its heart, this is about dignity. Older adults in Kansas adult care homes deserve care that respects their humanity, not treatment that silences it.
Kansas State Capitol building at dusk in Topeka
By Libby Hastings February 16, 2026
Kansas Advocates for Better Care testified on FE waiver funding and supported bills on decision-making, dementia training, and memory care standards.